Our staff consists of me as editor. My supporting editors are people and clinicians from all over the world, like yourself, who write into the network. Most have hyperacusis (sound sensitive), recruitment (sound sensitive with hearing loss), tinnitus (ringing in the ears), phonophobia (fear of sound), misophonia (dislike of specific sounds), vertigo (dizziness), autism or Meniere’s disease (combination of auditory problems).
Some are from the medical community who seek to learn and understand. We applaud this since E.N.T.’s (Ear Nose and Throat) doctors are renown for misdiagnosing our condition, giving poor advice and/or subjecting our ears to tests which collapse our tolerance to sound even more.
We network with many organizations throughout the world like the American Tinnitus Association, Vestibular Disorders Association (VEDA), National Organization for Rare Disorders (NORD), Tinnitus Association of Canada, Hearing Education & Awareness for Rockers (H.E.A.R.), National Institute of Hearing and Communicative Disorders Association (NIDCD) and Autism Research Institute just to name a few. Many doctors, audiologists, and health organizations worldwide refer people to our network.
No one knows more about our condition than we do! Many have found this website to be an invaluable tools in helping themselves and their families understand hyperacusis. After reading the available information, you may be in a better position to determine if you have hyperacusis. If you would like to become part of our international registry of individuals who have hyperacusis and be able to purchase helpful products from the network (sold at cost – far below the price you would pay at a retailer) consider becoming a member of the network by filling out the form in the ‘membership info’ section of our website. If a new breakthrough occurs in treating hyperacusis a mailing will be sent to all members on this registry. God Bless…
The Hyperacusis Network